We are here to provide a hub of support and help for people with Sickle Cell or Thalassaemia

About

Our aims are to:

• Raise the awareness of these disorders among the BME and wider communities.  

• Amplify the voices of individuals, carers and members of families affected by sickle cell disorder or thalassaemia disorder.  

• Offer advocacy, support and advice to individuals, carers and members of families affected by sickle cell or thalassaemia.  

• Signpost community members to health, social care, education and housing services.  

• Work in partnership with others to deliver conferences, workshops and social events that raise awareness of issues and improve education on these disorders.  

• Maximise the quality of provision that is on offer to individuals, carers and members of families affected by sickle cell disorder or thalassaemia disorder.  

• Work holistically and collaboratively with education, housing, social care, health service commissioners, hospital consultants, nurses and academic researchers to deliver a quality service to individuals, carers and members of families affected by sickle cell disorder or thalassaemia disorder.

• Work to capitalize on the quality of support available to the individuals, carers and members of families affected by sickle cell disorder or thalassaemia disorder.  

• Encourage research into the disorders, leading to the implementation of the best possible package of support and care.  

• Help to raise funds for the individuals, carers and members of families affected by sickle cell disorder or thalassaemia disorder